CLUSTERBUSTERS 19th ANNUAL U.S. PATIENT CONFERENCE


September 12-15, 2024

Join Clusterbusters for a long weekend of support, education, and community in Rosemont, IL.

Scroll down for more information including the course overview, registration, hotel details, and the conference agenda.

For 18 years, our conference has offered incredible opportunities to meet other clusterheads and to learn from experts about how to manage this challenging condition. We hope you will join our family.

The conference will begin on Thursday afternoon with small group discussions. The Director's reception follows these groups in the evening.

Friday and Saturday will be full days of educational and support-focused presentations. Some presentations offer CME credit (marked with * on agenda below).

Sunday morning will include social gatherings.

Your hotel stay includes daily breakfast and a happy hour each evening.

Lunch will be provided by Clusterbusters on Friday. 

On Saturday evening, friends old and new are cordially invited to join for dinner and a special event. We will all celebrate as long-time members of the Clusterbusters' family, Dan Pace and Rhonda Card, exchange wedding vows! Immediately following this, we invite you to join us for dinner and entertainment. This event will be Woodstock-themed, so be prepared to show up in your grooviest attire (not required).

Note: Agenda is subject to change

Conference Information


Conference Documents

Scholarships

The scholarship application is closed at this time. If more funds become available we will alert you here.

 

Hotel/Venue Information

Embassy Suites by Hilton Chicago O'Hare/Rosemont

5500 N River Rd.

Rosemont, IL 60018

(847) 678-4000

Block Closed On August 24, 2024 - Negotiated rates are no longer available.

Hotel Details

  • Check-in is at 3:00 PM and Check out is at 12:00 PM
  • Parking at the hotel is $10 per day and you must be registered with our group to receive this discount.
  • Complimentary hot breakfast and evening happy hour are included with a hotel room.
  • Complimentary wi-fi throughout hotel.
  • All rooms are suites.

Is This Your First Time Attending or Meeting Another Clusterhead?


ClusterBuddies Program

ClusterBuddies is a one-on-one, peer-to-peer support program. Clusterbusters has learned one of the greatest resources of our community is connecting to others who also experience cluster headache.

Since this is your first conference, we invite you to sign up for the free ClusterBuddies program. This will give you a buddy to get to know prior to attending. We will do our best to pair you with someone who is planning to attend as well. 

Sign Up For ClusterBuddies Here

Support Givers are not medical professionals or mental health experts. Support Givers can share their own experiences with cluster headache and lessons that Clusterbusters has figured out over 20+ years of patient support. This program is not a substitute for medical care. We always strongly recommend seeking medical advice before making any changes to your treatment plan. 

AGENDA


Thursday, September 12, 2024

3:00 PM - 3:45 PM

Oxygen Demonstration - Boardroom West

Mr. Bill Mingus

5:00 PM - 6:00 PM

Registration Open - Conference 205

5:30 PM - 7:00 PM

Opening Reception - Atrium - All Welcome

7:30 PM - 8:30 PM

ClusterBuddies Meetup/Orientation Support Group for New Attendees - Conference 205

Ms. Anna Williams

Friday, September 13, 2024

6:30 AM - 9:30 AM

Breakfast - Atrium - Provided by Hotel

8:00 AM - 9:00 AM

Registration Open - Ballroom Foyer

9:00 AM - 9:15 AM

Welcome and Opening Remarks - Ballroom

Ms. Eileen Brewer

9:15 AM - 10:00 AM

Introductions - Ballroom

Mrs. Ainslie Course, Mr. Steve Keschinger, Mr. Joe McKay

10:00 AM - 10:45 AM

Clusterbusters Updates - Ballroom

Mr. Bob Wold

10:45 AM - 11:00 AM

Break

11:00 AM - 11:45 AM

Patient Experience with Treatments* - Ballroom

Dr. Brian McGeeney

 

11:45 AM - 12:15 PM

AHS Emerging Leaders Program Project* - Ballroom

Dr. Lindsay Frerichs

12:15 PM - 12:30 PM

Q&A - Ballroom

Moderated by Mr. Steve Keschinger

12:30 PM - 1:30 PM

Lunch - Atrium - Provided by Clusterbusters

1:30 PM - 2:30 PM

Advocacy Workshop* - Ballroom

Mr. Kevin Lenaburg & Mrs. Julienne Verdi

2:30 PM - 3:00 PM

Patient Perspective* - Ballroom

Mr. David Rhodes

3:00 PM - 3:15 PM

Group Photo - Atrium

3:15 PM - 3:30 PM

Break

3:30 PM - 4:15 PM

Oxygen for Cluster Headache* - Ballroom

Dr. Alex Feoktistov & Mr. Bill Mingus

4:15 PM - 5:00 PM

Pathophysiology* - Ballroom

Dr. Hida Nierenburg

5:00 PM - 5:15 PM

Q&A - Ballroom

Moderated by Mrs. Ainslie Course

5:00 PM - 6:00 PM

Grow Demo - Conference 235

Mr. Kevin Lenaburg, Ms. Anna Williams, Mr. Bob Wold

6:00 PM - 7:30 PM

Happy Hour - Atrium - Provided by Hotel

7:00 PM - 8:00 PM

Safe Room Sessions

These sessions are support group sessions where you can feel free to say whatever you need to say about living with cluster headache in a safe space. There are sessions just for clusterheads and ones just for caregivers. There is also a session that anyone can attend.

Moderators - Mr. Joe McKay, Mr. Stuart Pearson, Mr. Joe Stone, Ms. Anna Williams

Saturday, September 14, 2024

7:00 AM - 10:30 AM

Breakfast - Atrium - Provided by Hotel

8:30 AM - 9:00 AM

Registration Open - Ballroom Foyer

9:00 AM - 9:15 AM

Announcements - Ballroom

Mr. Steve Keschinger & Mr. Joe McKay

9:15 AM - 10:00 AM

Second Study Results & Future Research Goals* - Ballroom

Dr. Emmanuelle Schindler

10:00 AM - 10:45 AM

Psychedelic Outlaws Discussion* - Ballroom

Dr. Joanna Kempner

10:45 AM - 11:00 AM

Break

11:00 AM - 11:30 AM

Caregiver Perspective* - Ballroom

Ms. Ann O'Connell

11:30 AM - 11:45 AM

Q&A - Ballroom

Moderated by Mr. Joe McKay

11:45 AM - 1:15 PM

Lunch on Your Own

1:15 PM - 2:15 PM

New Possibilities in Cluster Headache Treatment - A Panel Discussion

Dr. Brian McGeeney, Mr. Jim Michie, Mr. Matt Wellen & Mr. Bob Wold

Moderator:  Mr. Joe McKay

2:15 PM - 2:45 PM

Medication Use Survey Results* - Ballroom

Dr. Mark Burish

2:45 PM - 3:00 PM

Break

3:00 PM - 3:30 PM

The Role of CGRP in Cluster Headache

Dr. Melissa Rayhill

3:30 PM - 4:15 PM

Raffles - Ballroom

4:15 PM - 4:45 PM

Q&A - Ballroom

Moderated by Dr. Brian McGeeney

4:45 PM - 5:00 PM

Announcements - Ballroom

Ms. Eileen Brewer

6:00 PM - 7:30 PM

Happy Hour - Atrium - Provided by Hotel

7:30 PM - 10:00 PM

Dinner/Awards/Reception - Ballroom

REGISTRATION



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Course Information


_____________________________________________________________________________________

In support of improving patient care, this activity has been planned and implemented by Boston University Chobanian & Avedisian School of Medicine and Clusterbusters. Boston University Chobanian & Avedisian School of Medicine is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team. 

This activity has been approved for AMA PRA Category 1 Credit(s)™.

Course Director: Shuhan Zhu, MD

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"This Is The Place"

Thank You to Our Generous Sponsors


Lilly

National Headache Foundation

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To Sponsor:

Please reach out to Eileen Brewer at eileen@clusterbusters.org

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